004 Datenverarbeitung; Informatik
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Die Repositoriensysteme DSpace, EPrints, Fedora Commons und Greenstone werden auf ihre Eignung für ein Personendaten-Repositorium evaluiert. Der Text ist so aufgebaut, dass die Untersuchungen der jeweiligen Systeme oder einzelner Aspekte auch unabhängig voneinander gelesen werden können. Zudem wurde eine Unterteilung in allgemeine, technische und spezifisch-projektbezogene Aspekte der Evaluation vorgenommen.
Health Data as a Public Good. Routine health data, which are collected by health insurers and other agencies in the health care system, offer enormous potential for health monitoring and research. Germany has been slow to make such data available for socially beneficial purposes, partly due to concerns about privacy and data protection. Against this background, we discuss some of the most important potential uses of routine health data and call for a broader societal debate about the benefits, risks, and appropriate regulation of routine health data usage.We then review theWestern Australian Data Linkage System as an example of a data infrastructure that is characterized by high levels of stakeholder and patient involvement and a sophisticated method of privacy protection. While Germany does not need to copy this approach, we hope that the experiences of Western Australia and other countries will stimulate and inform the overdue debate about a modern, responsible, and sustainable approach to socially beneficial health data usage in Germany.